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Rare Disease Day
Results: 254

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31	+ Issue date 24th February 2014 Cancer52 publishes position statement on the UK Strategy for Rare Diseases Making sure that rare cancers aren’t written out of the script Add to Reading List Source URL: www.cancer52.org.uk Language: English - Date: 2014-10-15 03:12:58 Rare disease Cancer Rare Disease Day Gynaecological cancer Medicine Epidemiology Health
32	Rare Disease Day ® Ukraine Add to Reading List Source URL: www.csma.org.ua Language: English - Date: 2015-04-03 07:42:12 Rare Disease Day Rare disease Ukrainian language Languages of Europe Europe Ukrainian studies
33	Letter of intent Rare Diseases Nordic Network of Patient Organisations In the spring of 2014, Nordic rare disease patient organizations created the Rare Diseases Nordic Network of Patient Organisations as a way to furthe Add to Reading List Source URL: www.sallsyntadiagnoser.se Language: English - Date: 2014-07-04 12:18:24 Medical terms Rare disease Disease Rare Disease Day Patient safety organization Epidemiology Health Medicine
34	French National Plan on Rare Diseases Add to Reading List Source URL: www.sante.gouv.fr Language: English - Date: 2012-05-09 14:02:59 Medical terms Rare disease Orphan drug Chronic Disease Health care provider Health care Clinical surveillance Rare Disease Day Health Medicine Epidemiology
35	Microsoft Word - resolutionNC_Ukr_en.doc Add to Reading List Source URL: csma.org.ua Language: English - Date: 2013-04-06 05:11:04 Epidemiology Rare diseases Pharmacology European Organization for Rare Diseases Patient safety Ukraine Pharmaceutical industry Greek Alliance of Rare Diseases Rare Disease Day Medicine Health Europe
36	World Rare Disease Day, 28 February:25 PM World Rare Disease Day 28 February 2015 Add to Reading List Source URL: www.stevewaughfoundation.com.au Language: English - Date: 2015-03-16 18:45:22 Social media Wisden Cricketers of the Year Rastafari movement War Steve Waugh Rare disease Rare Disease Day Marley Facebook Cricket World Wide Web Computing
37	10 Years & Counting:30 PM Christmas, 2014 Add to Reading List Source URL: www.stevewaughfoundation.com.au Language: English - Date: 2015-03-16 18:45:21 Steve Waugh Rare Disease Day Cricket Epidemiology Rare disease
38	Microsoft Word - World Rare Disease Day.docx Add to Reading List Source URL: www.marfan.ca Language: English - Date: 2012-02-24 11:40:41 Syndromes Vascular surgery Congenital heart disease Marfan syndrome Aortic dissection Bicuspid aortic valve Cardiology Aortic valve Echocardiography Medicine Health Circulatory system
39	National Strategy for the Development of Health Care for Patients with Rare Diseases for the Years[removed]CONTENTS 1. Introduction 2. Characteristics of rare diseases (hereinafter "RD") 3. Initiatives and intentions o Add to Reading List Source URL: www.sazch.sk Language: English - Date: 2013-04-19 14:44:03 Healthcare Pharmacology Health economics Rare Disease Day European Organization for Rare Diseases Rare disease World Health Organization Chronic Health care provider Health Medicine Medical terms
40	Downloaded from adc.bmj.com on February 9, [removed]Published by group.bmj.com Rare childhood diseases: how should we respond? Y Zurynski, K Frith, H Leonard, et al. Arch Dis Child[removed]: [removed]originally published Add to Reading List Source URL: www.apsu.org.au Language: English - Date: 2012-12-26 17:49:20 Epidemiology Rare diseases Rare Disease Day Rare Diseases Clinical Research Network European Organization for Rare Diseases Orphan drug Rett syndrome Orphan Drug Act Disease Health Medicine National Institutes of Health